To explore the spectrum of data access (from open to registered to controlled), with the specific goal of defining a registered access level, i.e. what are the conditions/attributes of registered access, how is it distinct from open access or controlled access, and when can (or should) one move from one system to another. The research will be applied in the context of the Beacon, Matchmaker Exchange and BRCA Challenge demonstration projects.
- McGill University / Université McGill
- Montreal, Canada
- Stephanie Dyke , McGill University / Université McGill , Montreal, Canada