• Posted: December 18, 2015

Accountability Policy

About This Work Product

Openness and accountability between stakeholders are needed to foster trust and collaboration. This policy is addressed to individual and organizational members of the GA4GH, as well as the broader community of stakeholders involved in data sharing. Section II outlines best practices for monitoring and responding to non-compliance with data sharing standards, and is primarily directed to stakeholders involved in oversight of research consortia, projects, or institutions; the clinical sector; or industry. Section III outlines best practices for transparent and accountable data sharing, addressed to specific stakeholder groups.The Policy builds on the GA4GH Framework for Responsible Sharing of Genomic and Health-Related Data, which sets forth a harmonized, human rights approach for responsible data sharing.

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Work Product Details

Topics:

  • Compliance
  • Data Sharing
  • accountability
  • oversight
  • monitoring

Leadership

  • Mats Hansson
    • Uppsala University
    • Uppsala, Sweden
    • Chair, Group
  • Calvin Ho
    • National University of Singapore
    • Singapore, Singapore
    • Co-Chair, Group

Coordinator

Team

  • Mats Hansson , Uppsala University , Uppsala, Sweden
  • Calvin Ho , National University of Singapore , Singapore, Singapore
  • Virginia Barbour , Queensland University of Technology , Brisbane, Australia
  • Edward Dove , University of Edinburgh , Edinburgh, Scotland
  • David Gurwitz , Tel Aviv University Israel
  • Jennifer Harris , Norwegian Institute of Public Health , Oslo, Norway
  • Yann Joly , McGill University / Université McGill , Montreal, Canada
  • Bartha Knoppers , Centre of Genomics and Policy , Montreal, Canada
  • Katherine Littler , Wellcome Trust Sanger Institute , Hinxton, United Kingdom
  • Mahsa Shabani , University of Leuven , Leuven, Belgium
  • Adrian Thorogood , McGill University / Université McGill , Montreal, Canada
  • Eva Winkler , University of Heidelberg , Heidelberg, Germany
  • Nik Zeps , University of Western Australia , Perth, Australia