Organizational Membership

Organization Information

Organization Name
How your organization will be identified on our Member list on genomicsandhealth.org.

Contact Information

Primary

Primary
The Primary will be the main representative of the organization, will be contacted to make decisions for the organization, and will receive regular Global Alliance updates.

(Dr., Prof., Mr., Mrs., Miss., Ms., …)

Administrator

Administrator
The Administrator will be copied on all emails sent to the Primary and may receive additional email requests to keep the organization’s information up to date.

(Dr., Prof., Mr., Mrs., Miss., Ms., …)

Signer

Signer
The Signer has authority to act on behalf of the organization with respect to Global Alliance matters.

By clicking the “Submit” button you hereby confirm that, as the Signer, you are authorized to accept the terms and conditions of the Membership Agreement and the Constitution on behalf of your organization.

An email will be sent to you requesting confirmation of your organization’s submission.  The Global Alliance for Genomics and Health will review your organization’s application upon receipt of this confirmation.

(Dr., Prof., Mr., Mrs., Miss., Ms., …)

Member Agreement

MEMBERSHIP AGREEMENT
THE GLOBAL ALLIANCE FOR GENOMICS AND HEALTH

This Membership Agreement establishes that the below-referenced organization is an Organizational Member of the Global Alliance for Genomics and Health (Global Alliance). All information and criteria in this Membership Agreement are consistent with and represented in the Constitution of the Global Alliance.

Background and Mission

The Global Alliance is an independent, not-for-profit association, comprised of organizations and individuals from diverse fields such as healthcare, research, disease advocacy, life science and information technology, dedicated to improving human health by maximizing the potential of genomic medicine.

The mission of the Global Alliance for Genomics and Health is to accelerate progress in human health by advancing a common framework of harmonized approaches that enables effective and responsible sharing of genomic and clinical data, and by catalyzing initiatives that drive and demonstrate the value of data sharing.

More information regarding the principles, work, governance, and structure of the Global Alliance can be found in the Constitution.

Membership Rights and Responsibilities

Organizational Members are entities, either not-for-profit or for-profit, in fields such as healthcare, public health, biomedical and other research, information technology and life sciences, and disease and patient advocacy that subscribe to the mission, founding principles, and goals of the Global Alliance.

Membership rights and criteria are set forth in the Constitution, which are subject to change following the Amendment process detailed in the Constitution. As of the date set forth below, the following rights and criteria apply.

Individuals from Organizational Members may play various roles, including membership of Working Groups, other committees, and the Steering Committee. Each Organizational Member will have the right to designate individuals from its organization who will represent the organization in Global Alliance-related work, meetings, and governance matters.

Subject to availability of resources and consistent with their own mission and policies, Organizational Members are expected to contribute substantially to the capabilities and capacity of the Global Alliance in the following ways:

  • Commit to the Global Alliance’s shared mission and principles of responsible data sharing;
  • Collaborate on issues, knowledge and best practice, and contribution to the development of interoperable tools and methods; and
  • Catalyze data sharing, to the greatest extent possible and appropriate to your organization’s mission, through participation in data sharing activities and by advocating for the use of harmonized approaches to share data responsibly.

Recognizing that genomic and clinical data sharing is a relatively new and evolving ethos, Organizational Members are not required to commit to a particular threshold of data sharing as a condition of membership in the Global Alliance. Participation in specific data sharing projects, initiatives, or networks developed or catalyzed by the Global Alliance may carry additional data sharing requirements that go beyond this agreement.

Organizational Members that do not adhere to the mission and founding principles of the Global Alliance, or that act in such a way as to damage the interests or reputation of the Global Alliance, may be removed from Membership by a majority vote of the Steering Committee.

An Organizational Member may resign at any time by sending a written notice to the Executive Director of the Global Alliance at the following address: theglobalalliance@genomicsandhealth.org.

By signing this membership agreement, the below-referenced organization agrees to participate as an Organizational Member of the Global Alliance.

This agreement is not intended to and does not create any legally binding financial or other obligation on the part of the signatory organization or between the signatory organization and the Global Alliance or any of the partner organizations and does not establish a joint venture, partnership, association, or other entity.