Framework for Responsible Sharing of Genomic and Health-Related Data

  • Published: September 10, 2014
  • Last updated: September 12, 2014

About this document

Document cover

The Framework for Responsible Sharing of Genomic and Health-Related Data provides a principled and practical framework for the responsible sharing of genomic and health-related data. It contains foundational principles and core elements for responsible data sharing, and is guided by human rights, including privacy, non-discrimination, and procedural fairness.

Information

Details

Work Product Type:
Document
Working Group(s):
Regulatory and Ethics
Initiative:
Framework

Contributors

Topics

  • Code of Conduct
  • Data Sharing
  • Bioethics
  • Data
  • Genomics Policy
  • Policy
  • Genomics
  • Clinical Data
  • Genomic Data
  • Law
  • Governance
  • Health
  • Health Data
  • Open Access
  • Open Science
  • Benefit Sharing
  • Equity
  • International Researcher
  • Collaboration
  • Privacy
  • Data Protection
  • Confidentiality